The Medical

It took over a year to arrive at a diagnosis for Carling after she started showing symptoms and had her first seizure. It took almost another year for her parents to be able to pronounce “Late Infantile Neuronal Ceroid Lipofuscinosis” (CLN2). A neurodegenerative disorder which they were told had “no treatment, no cure and a life expectancy of age nine.”

Click here to learn more about this simple yet devastating disorder and the approach the family took to manage through their journey using an integrated medical model, which evolved as they learned and forged forward.